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Posts Tagged ‘UK PM Theresa May’

Charlie was posed with his British passport

The parents of Charlie Gard are begging British Prime Minister Theresa May to make good on her statement to Parliament that she was confident the hospital which is determined to remove Charlie’s life support “always will consider any offers or new information that has come forward with consideration of the well-being of a desperately ill child.”

UPDATE: in a great turn of events,  British High Court to hear “fresh evidence” in Charlie Gard case

In the UK Mail, Connie Yates and Chris Gard assert that five world specialists have recommended their baby receive the experimental treatment they have long sought.

This is in stark contrast to the official opinion of London’s Great Ormond Street Hospital (GOSH) that Charlie cannot be helped and attempts to do so could harm him.

UK Prime Minister May

Connie told reporters she has sent a letter to Prime Minister May pointing out evidence in favor of the experimental treatment that is not part of the court record. She is hoping that the Prime Minister will use it in her private meeting with President Donald Trump scheduled today during the G-20 summit in Hamburg, Germany.

Also early Friday comes news of two developments– born of urgency and desperation– designed to help block the imminent death of Charlie.

In February Connie and Chris originally sought a court order to compel GOSH to release their son, who suffers from Mitochondrial Depletion Syndrome (MDS), a debilitating chromosomal condition. They intended to travel with him to the U.S. for “nucleoside bypass” treatment, but were rejected in every court.

As Charlie’s plight became more desperate and more public, Pope Francis and President Donald Trump have offered to help in any way possible. Today’s developments, which began earlier, involve (1) two American hospitals and (2) the Vatican.

The first development People magazine reported, came from New York Presbyterian Hospital/Columbia University Medical Center. They offered to admit Charlie for treatment onsite or, alternatively, to ship the experimental bypass medication with instructions to GOSH where Charlie has been a patient since October.

Speaking Friday to Good Morning Britain TV, Charlie’s mom Connie said a meeting with GOSH was set for 11 a.m. Friday to discuss possibly administering the experimental oral medication. She told the media that five doctors in Europe and the U.S. who specialize in MDS support that route, with about a 10% chance of it working for Charlie. She explained that 18 people have already benefited from it, with some experiencing “amazing responses, very quickly.”

Pope Francis

The second hopeful development for Charlie is possible Vatican issuance of a passport for him. The thought is that if Charlie is a citizen of the independent, sovereign state he would not be subject to the “death warrant” supported by the British and European courts.

The Sun quoted a highly placed Vatican source commenting that issuing citizenship to Charlie is “unprecedented” but if it allows current legal barriers to “be overcome, then so be it.”

The Pope has expressed a “personal interest in Charlie” and Vatican Secretary of State, Cardinal Pietro Parolin says, “We are doing whatever we can.”

GOSH officials continue not to release any comment on the situation, attributing the silence to their duty to guard patient privacy.

PUBLIC OUTCRY, PRIVATE ANGUISH
Frantic calls to save Charlie from an unjust death continue to flood the Internet and inspire ongoing public events.

Yesterday, 40 Members of the European Parliament signed onto an open letter expressing their “full support” for Charlie and his parents. “We deem ourselves obliged to voice our deepest concerns about the outrageous outcome of Charlie’s case, which infringes Europe’s most fundamental values, particularly the right to life, the right to human dignity and personal integrity.”(See the full letter.)

Connie disclosed to the BBC that the Pope’s intervention earlier this week came after she wrote a letter to him.

Charlie’s parents find solace in hospital chapel

She said, “It does give us a hope definitely, because there was no hope left. Charlie was going to die on Friday and, you saw the video we did, we were absolutely devastated. We had no control over it, the way it was done. And then it was going to be on the Monday instead but I think the White House got involved over the weekend and then that changed things.”

Connie described to the ITV audience the “absolute living hell” of recent days, having expected their son to die last week. “You can’t even put it into words, how horrible it is that he’s our own flesh and blood and we don’t have a say in his life,” she said.

Thursday night, the couple released a photo of them in the hospital’s St Christopher’s Chapel — where they retreat when things “simply get too much to bear.”

On Good Morning Britain on Friday, Connie assured the public, “we are completely devoted to [Charlie] and he’s not in pain and suffering, and I promise everyone I would not sit there and watch my son in pain and suffering, I couldn’t do it.”

She then added: “Euthanasia is illegal. Suicide is illegal. How is this legal?”

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Charlie & dad in hospital

After months of competing British headlines over the now international  battle to save baby Charlie Gard’s life, today’s UK Express  may clinch the title: “Donald Trump to roast Theresa May on the heartbreaking Charlie Gard situation’ at G20.”

The Express reports that President Trump has scheduled an hour long appointment with Prime Minister Theresa May on Friday, during the time that world leaders assemble for the G2- world summit in Hamburg, Germany.

Thomas Hunt reported, “Although the reasons for the meeting have not officially been disclosed, the insider suggested the hour–long meeting, which will occur during the G20 summit in Hamburg, will center on the desperately ill 11–month–old boy. The source added the US President is said to have ‘a very good understanding of the whole case’.”
 
The same White House source told the Daily Mail last night
“The President is deeply moved by the heartbreaking situation facing Charlie Gard and his parents. Although the President himself has not spoken to the family, members of the administration, assisted by British officials, have done so. As a father and grandfather, President Trump understands the limitless love one has for a child and he wishes to be helpful to Charlie Gard and his family, as does Pope Francis and millions of families worldwide….he is willing to provide assistance should they need any.”

Prime Minister May faces seemingly ironclad rulings from three UK Courts  (The High Court, Appeal Court, and Supreme Court) and the European Court of Human Rights,  all sanctioning the removal of Charlie’s life support. It would appear they have not given her any wriggle-room when they insist Charlie’s “best interests” dictate he must die at the hospital.  Now.

His parents vehemently disagree and refuse to give up. Chris Gard and Connie Yates have waged a relentless battle against institutional power. Eleven-month-old Charlie has a rare and debilitating chromosomal condition in which his cells cannot replenish essential energy. A natural compound, orally administered, has shown some success as a treatment in the United States.
Going viral: I am Charlie Gard

Going viral: I am Charlie Gard

GLOBAL SOLIDARITY FOR CHARLIE
Last week, after all courts opposed life for Charlie, his death seemed imminent.  A weak promise not to rush the process from the Great Ormond Street Hospital in London met with a tidal wave of global solidarity for Charlie’s parents, including viral posts of multi-language “I am Charlie Gard” arm bracelets.

Various public protests and peaceful demonstrations  are increasing. Tonight Liverpool city landmarks are decked out in blue lights for Charlie.

Responding to Charlie’s plight, Pope Francis and President Trump tweeted encouragement to the Gard family.  Connie Yates responded in return, “The support from the Pope and the President has given us hope. They are traditional men who believe in the family.”

Other nations are said to be lobbying on Charlie’s behalf. The Daily Mail’s Martin Robinson reported “Yesterday it emerged the White House has been phoning the family and also the office of Health Secretary Jeremy Hunt. And the international tug-of-love over Charlie intensified as Italy also urged Britain to help save him. The Italian Foreign Minister personally lobbied his counterpart Boris Johnson in a phone call between Rome and London.”

But Johnson rebuffed an offer from the Rome children’s hospital to have Charlie transferred there. Many Twitter users are urging President Trump to send his private plane to rescue Charlie. Get that baby on a jet and give him asylum!” said one.

And we know that the President reads tweets.

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