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Posts Tagged ‘American College of Pediatricians’

The American College of Pediatricians has congratulated the Kansas legislature for the passage of Simon’s Law, “on behalf of our most vulnerable patients and their families.”

In a letter this week to Kansas Gov. Sam Brownback, the College’s president,  Dr. Michele A. Cretella, urged him to sign the first-in-the-nation bill, which is exactly what will happen Friday morning in a public ceremony in the Capitol at Topeka.

As a backdrop, she cites a Feb. 2014 article in the journal Pediatrics, for her assertion that, “Once inconceivable, the practice of hospital staff placing a do not resuscitate (DNR) order on a child’s chart without the informed consent of the child’s parents or legal guardian is on the rise.” (see more here)

Infant Simon Crosier with his brothers before his death by secret DNR

Dr. Cretella congratulates that, “Simon’s Law is designed to prevent this practice. It will guarantee parents their inalienable right to participate in the healthcare decisions of their children. The willingness of some physicians to circumvent the child’s and parent’s or guardian’s consent regarding disagreement over medical care is ethically concerning. This is because medical decision-making is increasingly predicated upon the ill-defined and subjective concept of ‘quality of life’.”

She continues, “While a life with one or more disabilities may be considered intolerable by some, there are many children and adults with one or more severe disabilities who believe otherwise, as do their families. A medical team of highly accomplished, able-bodied individuals that relies upon its subjective and imperfect prediction of a child’s potential quality of life in the future, as a basis for its decision-making, is likely to be biased against preserving the life of a disabled child. Allowing these medical teams to then force that biased view on a patients and his family via unilateral DNR, approaches the practice of euthanasia.”

This is the context of why Simon’s Law is a great step in reclaiming a cultural respect for the dignity of human life. Dr. Cretella explains,

“Simon’s Law acknowledges every human being’s inherent dignity and the fact that patients and their guardians– most especially parents of minors– have the right to know policies concerning the ‘denial of life-saving care’.”

Dr. Cretella

In conclusion, Dr. Cretella writes, “Moreover, the requirement that patients themselves and/or their parents or other legal guardian receive both written and verbal notification before a Do Not Resuscitate Order (DNR) is placed in a medical file respects the principles of beneficence, nonmaleficence, justice and autonomy.”

Kansans for Life appreciates the support for Simon’s Law from such a respected group… one that defines itself as designed “to promote a society in which all children, from the moment of their conception, are valued unselfishly.”

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